Resources

The Policy Lab have created a range of resources to support policy advocacy around optimal transition care for people living with sickle cell disease.

We encourage you to read, download and use these resources in your advocacy to improve transition care for people living with sickle cell disease.

The Charter

The Charter for optimal transitions from paediatric to adult care in sickle cell disease

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Charte pour une transition optimale des soins pédiatriques aux soins adultes pour les personnes atteintes de drépanocytose

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Carta per una transizione ottimale dalle cure pediatriche a quelle per adulti nella drepanocitosi

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Estatuto para transiciones óptimas de la atención pediátrica a la atención de adultos en la enfermedad de células falciformes

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Videos

About the Policy Lab and why care transitions in sickle cell disease

Aghate Wakunga

Professor Caterina Minniti

Jenica Leah

Dr Valentine Brousse

David-Zacharie Issom

Mimi Minsiemi Maboloko

Advocacy Toolkit

Conference Posters

Event Materials

Bridging the Gap: Sickle Cell Disease as a Case Study of Paediatric to Adult Transition in Rare Disease – Summary of the roundtable

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Euractiv: Bridging the gap: sickle cell disease as a case study of paediatric to adult transition in rare disease

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Optimal transitions from paediatric to adult care

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Sickle Cell Transitions Policy Lab

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